Building a stronger disability
community together

Nothing About Us, Without Us

As a member-driven, Disabled People’s Organisation (DPO), we aim to give all of our peers a voice in a world where they are often spoken for, rather than listened to and consulted. Our story begins in advocacy, and creating a peer movement for change.

Image description: Six women sitting in a row, speaking to an audience

2009: The Start of Change

In 2009, a Rudd government commissioned report concluded that there needed to be significant reform to the current funding model. The model at this time was a block funding model, which saw funding given directly to providers. The report highlighted to significant inequities within the model and the disempowerment of the people accessing it.

The National Disability Strategy (NDS) was created as to outline a vision for change, which highlighted the need for greater inclusion of people with disability. This strategy detailed the commitment required nationally to support people with disability. The reform, which introduced the National Disability Insurance Scheme (NDIS), would completely change the funding model. 

Under the NDIS, funding would be given directly to the person accessing it, rather than having it distributed on their behalf by a service provider. This provided people with disability greater choice and control over their support.

Launching the NDIS

In 2012, the Hunter region was named as a launch site for the National Disability Insurance Scheme (NDIS). There was some hesitancy about the potential impact on those utilising its services, especially since the NDIS model was so new, with it being named a “world-first”. There was a concern in the region that there was a lack of information and education around the NDIS, and that the voices of people with disability was being lost amongst the chaos. 

As a response to all of this commotion, a group of peers and allies hosted a public forum called “NDIS: Getting in Control”. Held in Newcastle, the event covered the importance of disability-led support organisations. This event was a resounding success, with over 230 attendees and as a result, CDAH was formed. CDAH became the first Disabled People’s Organisation (DPO) in the Hunter region and remains the largest in the region today. 

Image description: Three CDAH peers smiling and waving

The Closure of Stockton Centre

 In 2018, the NSW government announced that Stockton Centre and all other large residential centres for people with disability would be closed.

CDAH played a pivotal role during the closure of Stockton Centre by providing transitional support to people with disability to move out of the centre and into homes in the community.

These supports included establishing of one-on-one peer support, mentoring and coaching, and visiting peers within their new homes in the community. 

Our Peer Movement - A Timeline

2009

Seeds of Reform

In 2009, a national inquiry exposed the inequities of the block-funding model, leading to the National Disability Strategy (NDS) and laying the groundwork for the National Disability Insurance Scheme (NDIS).

2009

2012

CDAH Founded

When the Hunter was chosen as an NDIS trial site, more than 230 people came together at the forum “NDIS in the Hunter: Getting in Control.” Out of this event, a working group of people with disability and allies was formed to establish what would become Community Disability Alliance Hunter.

The organisation was first known as the Hunter Disability Support Organisation, before being renamed and formally incorporated as CDAH under the guidance of a 20-member working group.

CDAH was established with a board and constitution, built on the values and structure of a Disabled People’s Organisation. 

2012

2013/14

Building Strong Foundations

Incorporation and governance were established and with seed funding CDAH opened its first office and employed staff. Planning Cafés began in Charlestown to help people and families navigate the NDIS, alongside early initiatives such as the Peer2Peer project. 

2013/14

2015

Deafblind Social Launched

The Deafblind social group began in 2015 to reduce isolation and foster connection for members of the Deafblind community. This group would inspire and lead to the Hunter Deafblind Connect Project established four years later.

2015

2016

Powerful Peers

With this funding, CDAH launched the first formal peer facilitator training and mentoring program, growing a stronger peer-led network.

2016

2017

Self Manager Hub

CDAH became co-lead in building a peer-led hub to support people self-managing their NDIS plans.

2017

2018/19

Peer Learning Hub & Peer Groups

Developed peer training packages including Introduction to Peer Support, Facilitation and Mentoring.

Growth of peer-run communities including The Hive (mental health), Women First, Queer Peers, Writers Group, and MAG (Members Action Group).

2018/19

2019

Hunter Deafblind Connect Project

Began running regular hubs and activities, including partnerships with universities, local organisations and communities. The Hunter Deafblind Connect Project also developed the nationally recognised Deafblind Inclusion Model.

2019

2020

Supporting the Closure of Large Residential Centres

With the closure of Stockton, Tomaree, and Kanangra centres, CDAH played a pivotal role in supporting people with disability to transition from institutional living into the community, providing mentoring, peer support, and decision-making support.

2020

2021

Community Connections

Peer connectors supported people in group homes to join communities and build friendships.

2021

2022

Podcast Launch

Produced and distributed across Spotify, YouTube and other platforms, making disability lived experience stories widely accessible and aligning to human rights. 

2022

2023

10 YEARS OF CDAH!

Celebrated a decade of peer-led action, and relocated to 202 King Street, Newcastle. 

2023

2023

Contributing to the Royal Commission

CDAH amplified local voices in the Disability Royal Commission, ensuring the experiences of people with disability in the Hunter were represented nationally. The release of the final report in 2023 marked a milestone in disability history.

2023

2024

Launch of DisCo

CDAH launched Disability Consulting (DisCo), creating paid roles for people with disability as consultants and facilitators. Through partnerships with major Hunter organisations, DisCo demonstrates the value of lived experience in building inclusive communities.

2024

“If you don’t give your idea a chance then you will never know if your idea could  have made a difference” 

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